What: I have lyme disease...questions?

I am thirteen now. When I was very little, probably about 3 or 4, I was diagnosed with Lyme Disease. My mother has it as well. She doesn’t have any idea where she got it, but she started showing symptoms a few days after I was born. I got it from her.

I am in middle school now, and have had to be homebound schooled (where a teacher from the school ISD comes to your house twice a week and teaches you, because you are too sick to come to school) 4 times (second grade, fourth grade, sixth grade, seventh grade) and I just decided to be homeschooled. I am very shy, but I have a lot of friends. All of them know I have Lyme, but don’t really understand it. I feel really alone and not normal because of it. I can’t meet guys or meet new friends because I am now homeschooled. I don’t get out a lot, because I have a lot of Lyme ‘flare ups’ (very bad fatigue, fever/chills, stomach aches, headaches). I am just really tired of feeling so left out, and not-normal, and weird because of it and all of its effects. I really want nothing more than to just be like everyone else, ‘normal’, to be able to go to school every day (I missed 32 days of school in 2 and a half months). So I am wondering: Does anyone out there have Lyme? Do you feel like I do? How do you deal with it? Oh, also, I am on regular medication for Lyme and other co-infections. Me and my mom have chronic-persistent Lyme, which means it won’t just go away with medicine. Please help. Thank you very much in advance.

Answer #1

I don’t have Lyme but I think I understand what it feels like to be sick, home bound and sometimes lonely. First off, just because you are different doesn’t mean you aren’t normal. Everyone has something they think isn’t normal, in you case it’s having lyme and having to learn to deal with it. If you ask me I think you’ve done a pretty good job. Despite your “flare_ups”, you’ve been able to keep up with school and most importantly make friends even though you are shy. I think it’s really important to keep in touch with your friends and see them after school or on weekends. Just because you’re home schooled doesn’t mean you have to be home all the time. You can also have extra curricular activities like joining a club or after school art class. Just explain that you might not be able to show up all the time so people learn to be flexible.

A part from that, have you ever thought of getting in touch with a Lyme support group in your are? It might be nice for you and your Mom to meet poeple that deal with the same issues. It’s also a good way to make new friends that can truly understand what you are going through.

Here’s a list of websites where you can find support groups: http://www.lymenet.org/SupportGroups/ http://www.lymeinfo.net/support.html http://www.dailystrength.org/support-groups http://www.mdjunction.com/lyme-disease

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