I Think The Cluster Migraines Are Coming Back...

Last year (after three weeks of painful migraines) I was admitted into hospital with the worst pains I’ve ever had in my life. The doctors thought it was Cluster Migraines which is said to be the worst pain in the world (if you don’t believe me, look up cluster migraines on wikipedia). They done lumbar puncture on me, gave me a scan and took all sorts of samples from me. Worse still was that the only pain relief that helped with pain was the injected kind (which they only gave me when I was sobbing and almost screaming). It would have moments where I would go suddenly blurry in one eye before the pain climaxed (so high it was like some sort of seizure that made my head jerk back and forth for several minutes, and this happened several times a day). I can’t explain what was making me do this, but I’ve had bad migraines and blurriness for almost a week now. That’s how it started. I think they might be happening again and I’m so scared of it being true. If it is happening again I’ll probably ask doctors if they can sedate me until it’s all over or put me into a coma-like sleep until it’s gone. That may sound horrible but I really don’t want to go through all this again, especially if the doctors will refuse to give me painkillers that actually remove the pain. What’s the point in taking tablets that don’t help me? I’d almost rather be stabbed in the face than go through those pains again. Will it be possible for me to be sedated rather than making me suffer the worst pain in the world? (I live in the UK by the way, if that’s any help). I should have the right to know all my options.

Answer #1

We’ll, I don’t know about there but you would be hard pressed finding a Dr to sedate you here in the US unless you had end stage cancer. Over headaches are treated poorly because what can be causing the pain unless they find a brain tumor (even that is determined by the “type” of tumor–“that” tumor doesn’t cause headaches!!!WTF!!!) or a large hatchet sticking out of your head!!! I can sympathize because I went through the same thing for 2 years. They never did an MRI until I demanded one, where they found a tumor on the right side of my brain–that’s when the doc laughed and told me about “that” tumor (stated verbatim earlier). Also said they were benign–something you can not say until it is biopsied. Yes these tumors (meningiomas) are normally benight, but not always. Had it removed no headaches!! 3 mths later, another story. Back to square 1 and numerous trips to the Dr and emergency room looking not only pain relief but answers as to what was wrong. 6 more months passed like this. Pain is very subjective—that is it can’t be seen, touched,smelled or tasted. Many doc”s believe as I stated before that if a reason for the pain isn’t obvious then it doesn’t exist. In America, millions of people that have persistent headaches are labeled as drug seekers and are denied medication by their Dr’s and ER staff. They (myself included) are booted by their caregivers and told to seek treatment from some other Dr and others (again, myself included) are barred from entire facilities!! I finally found a fantastic physician, but it wasn’t until the entire headache issue was over I was a nursing student when all of this first started and was working as an RN when I finally made someone do an MRI on my cervical spine. I had been thinking about this for awhile and thought if the probem wasn’t in my head (no pun intended) then what about the neck! My MRI showed 2 herniated disks in my cervical spine. It will be 3 years this June since I have a headache. A long story I know but the point is the Dr’s are not advocating for you. YOU are your best advocate. Research and find out all you can about headaches and maybe suggest an MRI of your neck. (the one done on the brain is a separate scan and does not cover the neck. As for the pain I wish I could tell you there is something/someone who can help but I really can’t. I’ve heard cut out caffeine, don’t take anything for pain (not Tylenol or Motrin)because they can cause rebound headaches. What’s a person to do?? Btw, they kept telling me mine were migraines also!! Good luck, would love to know if you find out what’s causing them. Let me know if you do!! BE YOUR OWN ADVOCATE!!!FIGHT!! {=

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